We got home today. The doctors basically discharged us stumped. We are going to follow up with a whole gamit of specialists in the next few weeks and hopefully set a plan for a diagnosis and treatment. We went up for an MRI and she had a series of seizures after her test. They thought it might have been the meds to sedate her but she had another seizure the next day and the meds would have been out of her system by then. They found a small abnormality in her brain blood flow but are not concerned about it.
She's a conundrum at this point!
We'll be referred to a neurologist and an orthopedist here in town. We still have to go to Portland for her Urologist and GI team. Oh the joys of having a sick child!
Thank you all for your thoughts, prayers and well wishes. Knowing that I have those always gets us through the rough spots!
I'll keep you all posted!
Jenn
June Week Four Photos
1 month ago
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